Wednesday, January 11, 2012

What's the Plan? Asperger's and Homeschooling



This article was written by me and previously published in the Autism and Asperger's Digest in January 2010.

WHAT’S THE PLAN?



“What’s the plan for today, Mom?” asked my 13-year-old son Daniel. He always wants to know the plan. Daniel has been homeschooled for the last two years so every day is a little different for him. He asked me if I could put a calendar on the living room wall and write down what he is doing each day. I thought that was a great idea – even if not every home has a big calendar in the living room. He likes to cross off each day as it is completed so he knows what day it is and what is coming next.

His case of Aspergers is pretty mild so not everyone notices it. Most folks just think he is a little different or odd – a little loud or a little quiet or a little “off”. The ADHD just adds a little excitement to the already unpredictable mix.

Daniel used to go to the private school where I teach. Like many kids with ASD, he is very bright in some areas and has challenges in others. His teachers were so good to work with his unusual behaviors and learning challenges and to help him learn what he could. However, each day when he came home, he was done. He was worn out. The challenges of figuring out the social rules (or not figuring them out), dealing with the sometimes overwhelming sensory input, and learning to flex with the schedule changes in class took all he had. All he wanted to do each evening was come home, go to his room alone and work on building things. He didn’t have anything left for homework, for his family, or for other interests.

Daniel’s ADHD also made private school a challenge for him – the distractions of buzzing fluorescent lights, tapping pencils, and chirping birds outside the window were often too much for him. His disorganization academically caused him to continually forget to write down assignments or to lose assignments he’d already done. Most of the feedback he received regarding education and learning was negative.

Finally, in the middle of 5th grade, he hit a wall. He was depressed and tired and neither his teachers, counselors, nor I could figure out what to do. Fortunately, at that time, I met a friend who has a son with ASD who was homeschooling. A light bulb went off in my head. We began homeschooling at Christmas two years agao and we have been doing it ever since.

Kids with ASD often need to learn at their own speed and that’s what homeschooling allows Daniel to do. He learns at his own pace and about the subject matter that interests him. He also likes to have more time with his dad and me. He attends homeschool events like science classes and chess club and develops his social skills a little that way. The homeschooling kids that he meets seem to accept him just the way he is. The best thing, however, is that he is smiling, relaxed, happy, and creative again without the stress of “regular” school.

We have met many other parents of children with learning challenges at homeschooling events. It is a blessing to be understood. Last week at science class, Daniel had to leave the room when the presentation got too loud. I wasn’t there but another mom who has a child with sensory issues was – she just looked at Daniel with his hands over his ears making his way to the door, realized that the noise was the issue, smiled at him and watched him through the glass in the door until the noise was over and he came back into the room. At the homeschool Boy Scout troop, the leader watched Daniel for a few minutes, asked me if he was “on the spectrum”, and upon hearing my answer in the affirmative, said they’d be glad to have him in the troop. It is wonderful to be accepted despite your differences and that is what we have encountered in homeschooling.

One of the most important skills for any child to learn, especially one with special challenges, is the skill of lifelong learning and self-teaching. Some children can lose the love of learning that they are born with due to the pressure and stress of traditional schooling. Daniel was one of these children. Homeschooling has freed him to learn the way he learns best and to begin to desire to learn new things instead of being forced to do so. The removal of distractions and environmental stress has caused learning to be a joy instead of drudgery.

Homeschooling is not for every ASD child but it is one of the many options we have to educate our children in the way that is best for them. Each of our children is different – different gifts, different challenges, and different personalities. We, as parents, have the responsibility of figuring out which option is best for our children at different times in their lives. Homeschooling is the option that is working well for us right now.

In addition to the blessing of moving at his own pace, Daniel is discovering areas of interest and he has the time to focus on them. He has decided that he loves chess and enjoys drawing Manga and cartoons. One thing we thought we’d never see is a love for reading. With the extra time he has, Daniel has begun to read.

So, for our family, the answer to “What’s the plan?” is homeschooling for now. There are so many educational options for kids with ASD and we are thankful to have discovered the one that is best for Daniel right now. As he gains educational and social experience, he may decide to branch out into the world of traditional schooling again in the future.

If you are interested in learning more about homeschooling a child with special needs, there are some website resources you can explore:

· A to Z Home’s Cool - http://homeschooling.gomilpitas.com/weblinks/autism.htm

· Autism Link on Homeschooling - http://www.autismlink.com/pages/autism_homeschooling/

· Yahoo Group on Homeschooling Aspies – http://health.groups.yahoo.com/group/homeschoolingaspies/

You can also contact your local or state homeschooling group to make contact with other parents who are homeschooling children with special needs. Happy Planning!

Aspergers Self-Awareness

My 15 year old son has only recently become aware of what Aspergers is.  He knew he had the "label" about two years after he got the diagnosis.  Before that, he had an ADHD diagnosis and he wanted to stick with that diagnosis since he had just gotten a handle on what that meant and how it affected who he was and how he acted.  In the last year or two, he has begun to really understand it and it seems to help him make sense of who he is and how he relates to the world around him.

A book that really helped him begin to understand himself is the Blue Bottle Mystery by Kathy Hoopman.  It is a pretty simple "mystery" for younger kids but Kathy does  an excellent, entertaining, and informative job of laying out some of the main characteristics of Aspergers in a way that my son reallly understood.  Some of the characteristics she covers are: sensory issues, social awkwardness, difficulties with understanding others (being literal), not liking change, and unusual movements. 

Now I hear my son saying things like - "There are too many people in my room.  I have Aspergers and I don't like that." or "Please leave it in that place, I don't like it out of order because I have Aspergers."  He knows the he can improve on some of the things that he does.  For example, we were outside riding bikes and a neighbor boy fell off his bike and got a gash in his head.  Instead of asking if he was okay first, Daniel said, "That wouldn't have happened if you had been wearing a helmet like you are supposed to."  I told him that his timing was off - that he should have asked how the boy was and, once he knew he was okay, suggest kindly that he wear his helmet next time."  Daniel took the advice well and said he knew he had a problem with timing. 

He also became very agitated when his two much younger cousins were over at our house.  He really wanted to show off his massive Lego collection and let the boys play but he struggled with things being out of place.  I had to stay in the room with him a lot of the time to help calm him and "supervise" the boys so that he was able to share with him.  He wants to be kind and share but it is still a struggle for him.

However, if you were to ask him if he wishes he didn't have Aspergers, he would answer with a definite NO.  He likes who he is, quirks and all.  To him, the advantages far outweigh the challenges.  As a mother, I am really glad to hear that!  My perspective is often so much different.  I see the academic struggles, he sees a boy with an amazing visual memory who can learn almost anything.  I see a boy with social challenges, he sees a boy with the perfect number of friends (most of them also have Aspergers).  I see a boy who doesn't always read the social cues, he sees a boy who doesn't have to worry about what he does or says in public (within reason!) and who is not affected by peer pressure.  Only occasionally does he worry or wonder about life as he grows up - things like being socially acceptable enough to find someone to marry and have kids with (he loves kids and is really good with them) and what he will do for a living if he can't be a video game tester.  : )  (He did a really good job at Vacation Bible School last year with the four year olds!)

Right now, he is talking about taking his current area of focus (Christian comedy) and being the first (we think) Christian comedian with Aspergers.  That'd be pretty cool!  He also wants to talk to a first grade class about Aspergers since one of their class members just got diagnosed with the same thing.  That amazes me when I think of the shy boy in 5th grade who bailed on playing Joseph in the school Christian play because he just couldn't go out in front of the audience, even though he didn't have lines. 

We have tried so many interventions over the years - many of them experimental and proven only by anecdotal evidence - Neuronet and Braincore are a couple of them.  We've tried more common interventions like tutoring and writing lessons.  We've educated him at a private Christian elementary school, unschooling, homeschooling, homeschool "school" and schooling via videos.  Somehow, the combination of those things and the person God made him to be (genetically and experientially) have contributed to making him an amazing young man that I am proud of.  I know he's not perfect and so does he but we both know that God made Daniel the way he is on purpose and He has great plans for Him.  I'm so thankful that Daniel sees that (to quote Veggie Tales) - God made him special and He loves him very much!

All your children will be taught by the LORD, and great will be their peace. Isaiah 54:13

Thursday, September 22, 2011

Kenya Adventure Begins


September 22, 2011

Dear Friends and Family –

I am excited to share with you that Heather and I have the opportunity to go with our church to Nairobi, Kenya!  The trip will be February 6 – 15, 2012.  Heather is now in 7th grade and has been feeling like the Lord wanted her to go on a missions trip.  She has wanted to go to Kenya for a while also.  We are both excited that this opportunity has come up for her (and for me too)!

This trip will partner with CARE for AIDS (http://careforaids.org/).  “CARE for AIDS partners with local Kenyan churches to operate life transforming centers that serve the physical, spiritual, economic, and social needs of men and women living with HIV/AIDS. Each of these centers operate from within the local church and serve 80 clients at a time. These 80 men and women go through a nine-month process of education, training, and support in order to live full, productive, and healthy lives. “  We will be spending time training and encouraging the Kenyan Christians who run these centers.

In addition to this blessing, Heather and I will also get to spend time in Kijabe, Kenya encouraging and assisting some of our Brainerd Baptist Church missionaries who serve with Africa Inland Missions at Rift Valley Academy – a school for missionary kids. The cool part is that these particular missionaries are family – my sister in law and her family – Jon, Susan, Caroline, and Ben Stocksdale!

This fall, we will need to raise approximately $2,000 each for a total of around $4,000.  Please prayerfully consider a donation to Brainerd Baptist Church to help with our support needs.  All donations are tax-deductible.  If you are unable to help financially (or even if you are), please keep us (and the team) in your prayers. 

You can mail donations to me or the church but please make your check out to Brainerd Baptist Church (PO Box 8159, Chattanooga, TN 37414).  If you turn in a donation to the church directly, please put a post-it note that it is for Brooke & Heather Marsh – Kenya Trip.

If I don’t have your e-mail address, please send it to me so that I can keep you updated on our efforts and on the trip. 

Thanks for being a part of the Lord’s work in this way!  God bless you!

In Him,

Brooke & Heather Marsh

Religion that God our Father accepts as pure and faultless is this: to look after orphans and widows in their distress and to keep oneself from being polluted by the world.  – James 1:27

Monday, August 22, 2011

Classical Education Classes with Heather

It has begun!  Heather began her 7th grade homeschooling year with a bang by jumping into Challenge A at the Hixson Location of Classical Conversations.  She went from a very relaxed eclectic homeschooling year last year to, at her request, a more challenging homeschooling scenario.  CC is a program where a tutor (a.k.a. teacher) covers the subjects in a full day of classes and then she does homework and studies (alone and with me) during the rest of the week. The classes she is taking are:
She started about a week an a half ago (two class days and a lot of homework).  It has been a transition for her due to 5-6 hours of work a day, but, so far, I am VERY impressed.  In the last week and a half, she has learned how to do mind maps, visual organizers, KWO charts, how to research about an Amoeba and present it to class, how do decline Latin nouns and conjugate Latin verbs, read about the basics of our faith and creation, and drawn a map of the United States multiple times (drawn, not traced) with the state names, capitals, major rivers, and major features.  Plus, she has made friends, had fun, and met a wonderful tutor/teacher. 

It's looking good so far! 

She is also taking Art at Hilger Higher Learning like she did last year.




Tuesday, July 19, 2011

Learning Disabilities and Dragon Dictation

This past spring, my 15 year old son Daniel was re-tested with Hamilton County and re-diagnosed as having Asperger's and ADHD but was also diagnosed as learning disabled in written communication.  They suggested that, despite our efforts in tutoring and handwriting/spelling help, it was time to implement some assistive technology solutions.  Since he is entering high school this year and is planning to take Biology and Lit & Communication at Hilger Higher Learning, we knew it was time to give it a try.  Yesterday afternoon, we purchased Dragon Dictation and a small netbook (Acer Aspire One 11.6).  By last night, he was so excited and ready to go on writing stories, doing assignments, making lists of things that he'd wanted to put down but it was too difficult to type or write.  It is like it opened up a whole new world and a way for him to get the information inside his mind OUT.  The testing showed he is indeed very smart (which I knew of course) but needed help to be able to communicate and learn better.  Thankfully, Dragon Dictation is one of the tools that looks like it will be helping him to do that.  Praise the Lord for assistive technology.

He is also taking a summer course online at Giant Campus (Digital Art I) and a class at Chattanooga State (Web Design), both of which he is doing very well in.  Yet another encouraging and hopeful sign for me (mom) and for Daniel and his future endeavors.  The Lord always has a plan for us for a hope and a future (Jeremiah 29:11)!

Monday, February 21, 2011

Homeschooling High School

The scary day is quickly approaching when my oldest will be entering high school. The closer we get, the more I start to panic about homeschooling him for high school.  I am pretty sure that is God's plan for him for next year (9th grade) but I want to make sure I don't make choices that will limit him for the future.

His ADHD and Asperger's as well as his hands on and visual learning styles have so far been best suited by homeschooling and even some child-directed unschooling.  In "unschooling", he has chosen to study such things as Japanese, video game programming, world history (the Story of the World Audio books - I wanted him to do volume 1 and he loved them so much he asked for all of them and listened to all four them in a row), anime drawing, Christian comedy and more.

As I began to research the guidelines, options, and possibilities, I pulled out a book from the shelf that I had bought a couple of years ago but hadn't read.  It was Homeschooling the Teen Years.  This gave me a good overview of the ways that you can fulfill high school requirements, what colleges expect from homeschoolers, record-keeping, considering the GED, etc.

I still had questions so I headed to the website of my umbrella school - Home Life Academy.  I homeschool in Tennessee so I was thinking that there might be Tennessee specific requirements that I needed to know.  Their high school page of the website gave me details and videos on homeschooling for high school and even a goal sheet that I could print out.  Other useful info was found on the FAQ page.  The most helpful link was the one for homeschooling special needs kids.  It told me that I can use classes in each category at his level to fulfill the goals of the diploma requirements OR I can categorize him as special education for a diploma.  What a relief to know that I have lots of options for homeschooling high school.

My plan right now is to have him do some online classes (from Monarch Alpha Omega most likely)  and some classes (one or two) at Hilger Higher Learning (a local homeschool "school").  He is taking art there now and took math there first semester of this year (8th grade).  I hope to also have him take a summer class at Chattanooga State on web design and to do some other things to encourage continued self-directed learning while still completing requirements for his diploma.


With lots of prayer along the way, I know that God will direct me and Daniel along the path that He wants Daniel to follow.  I can trust that, above all, the Lord has a plan for Daniel to have a hope and a future (Jeremiah 29:11).  Isaiah 54:13 says - All your children will be taught by the LORD, and great will be their peace. AMEN!

UPDATE - January 11, 2011
Life with a teenager is never predictable, even less so when that teenager has Asperger's and ADHD.  Daniel's disability in written communication has caused us to drop the two academic classes he was taking at Hilger Higher learning (Biology and English).  We are continuing them at home using a lot of oral work and multimedia.  He didn't end up taking any Monarch online classes.  He took Flash Game Design from Giant Campus and decided that he didn't want to be a programmer.  He is still taking art at Hilger and loves it!  We may end up switching to a special ed diploma (with Home Life Academy) or simply a goal based non-college track diploma.  He can definitely learn and loves to do so but not in the ways that other "neurotypical" kids do.  Daniel's current desire is to be a Christian comedian.  That'd be cool - a Christian comedian with Asperger's!  Now, to figure out a way to tackle Math this summer!?!

Time 4 Learning Trial

I've been invited to try Time4Learning for one month in exchange for a candid review. My opinion will be entirely my own, so be sure to come back and read about my experience. Time4Learning offers standards-based language arts and math curriculum. Science,social studies and art lessons are provided as a bonus for most grades. Find out how to write your own curriculum review for Time4Learning.